Family · Health · Perspective

Jelly Belly

Most days I eat a very healthy vegetable and protein based diet. But then there is a day like today where I eat jelly beans and deli ham… but mostly jelly beans.

We made a long weekend last Friday-Tuesday of my annual neurology appointment in Denver. I had the car loaded with suitcases Friday morning before work. My husband and I locked up the office at 5pm, threw the cold snack bag in the car, and headed west grabbing the kids from daycare on our way.

Other than my son either not packing or losing his entire stack of pants and shorts somewhere between home and Winter Park, our time in Colorado was very smooth. We stayed at a friend’s condo. Fishing, biking, hiking, a mine tour, a gorgeous mountain morning 5K run, and the historic Georgetown railroad filled our time. Tuesday morning, we cleaned the condo and started back to Denver. One child got motion sick coming down the pass and lost all his stomach contents into a “Brain Flakes” toy jar.

My neuro appointment went very well. MS is still stable! HALLELUJAH! Those words alone are worth the 30 minute extra wait, hitting rush hour traffic, a tire low on air on interstate, and not getting home and in bed until almost 12:45am.

Full work day on Wednesday.

Thursday was our local county fair’s first full day. My kids joined 4-H this past year. My son took a Geology box with 18 rocks, minerals, and fossils.Geo BoxMy daughter took a single stemmed zinnia flower.

Then we volunteered at the Kiddie Barnyard for two hours and ended up with a new housecat that the local veterinarian had up for free adoption. After we lost our 15 year old feline family member in December, I swore the only way we’d do it is if the potential pet met my very specific requirements.

Well… we walk in to volunteer for a couple of hours and there he is. Met every box on my checklist: 1) Male. 2) 4yrs old. 3) Litterbox/House trained. 4) Neutered. 5) Laid back.

He came with a sweet hand-written note from the person who surrendered him complete with how he likes to have his head rubbed and eating habits. He was obviously loved by his previous owner. My guess is the person either moved to a pet free rental or went to a nursing home.

Meet Sullivan – aka Sully. (This was when we first saw him, He has since been to the vet for a solid bath and his vaccinations.)

Sully

Following our pet adoption, the kids and I worked the 4-H food stand for 6.5 hours. I was the main cashier for $3000+ in food sales. That was more mental math than I’ve done in years. Doing it mentally was faster than trying to use the calculator. Needless to say, my brain was unable to function very deeply when I got home late last night.

So… here we are: A new housecat. Over a thousand miles for my neurology appointment. Projects entered in the local fair. Volunteer shifts done. Absolutely no motivation to be productive at work or at home. And one big bag of jelly beans.

Thank goodness it’s Friday!

Health

Road Trip

travel-road-trip-animated-gif-3

Sunday- Monday was our biannual road trip to see my neurologist. We left after church on Sunday. Kissed the kids, installed the car seat in grandpa’s vehicle, threw the bags in the backseat of our truck and headed west. 

I love getting to spend that time with my husband — and by time I mean about 7 hours one way and then about 7 hours back. We cover a lot of topics that we don’t normally get to talk about. 

I sing in the car to pretty much anything that comes on. I tried to introduce him to a different genre of music, not so successfully. I listened to his talk radio shows for awhile. We tried to get excited about the Super Bowl, but meh. Not so entertaining on the radio.

We arrived at our friends’ apartment in time for the 2nd half of the Super Bowl and then continued to visit late into the night — 11pm is late for us. Don’t judge. We changed time zones and have two young kids. They were very gracious to put us up for the night. In the midst of our visit, they are closing on a new house and moving out of their apartment in 2 weeks!

capture

Denver is a big city. We spent most of the morning in traffic trying to get somewhere to eat breakfast. We finally settled on a clean, suburban IHOP where 3 guys were sharing a joint outside. Oh Colorado… How different you are…

Of course, IHOP isn’t known for its dairy free options so it isn’t EVER my first choice. However, the map on my phone had taken us to two options that were not open, so I settled for a California scramble minus the cheese and butter and added some hot sauce. 

After that we trekked back north towards a shopping center where I completely struck out on the two things I needed: jeans and a swimsuit. There are no swimsuits for sale in or around Denver in February. #Ihateshopping

Fortunately, there was a good coffee shop at this shopping center. I settled for a coffee and read my book while he continued to browse. (Present over Perfect – a gift from a friend for Christmas – check it out for a new read.)

As usual, my actual appointment and reason for the road trip was short and sweet. We reviewed my MRI – stable, did blood work – all in normal ranges, and ran thru my physical assessment – no loss of sensation this time! All good things.

She was very interested in my bout of GI virus about a month ago as it apparently caused a psuedo-relapse and threw my nervous systems for a loop before I even had the actual GI symptoms. The crazy pain it caused was likely a “MS Hug.” All things that are new to my experience with this disease. See my blog Tingles about this.

Two interesting developments:
1) We didn’t do contrast on my annual MRI. There is research that the gadolinium can eventually build up in the body and isn’t good for the kidneys, so the group of specialists where I doctor have decided not to order contrast unless they believe something is new or active. I have neither indicators, so no contrast.
2) There is a new treatment being approved by the FDA this spring. It is only twice a year infusions and thus far after 3 clinical trials, has no risk of PML. I’m doing well with almost non-existent side effects with the Tecfidera. I’m not looking to change right now, but this would be a good option in the future according to my neuro – pending getting it thru all the insurance hoops.

Home again home again…

We were happy to make it home late last night and the kids were excited to see us this morning. It’s a big sigh of relief when that trip is over and done.

Family · Fitness · Health · Perspective

Tingles

Did I Push Too Hard?

That is the question I was asking myself as I laid with my 4yr old at bedtime last night. We finished prayers. She talked about Lola the dog and Aspen her daycare friend. She answered my daily request of “what was the best part of your day?” And then we laid there and held hands while her favorite lullabies played softly.

I cherish this time of night with my littles. My husband and I trade-off nights with each child. Sometimes it is a quick 5 minute tuck-in with prayers, but tonight was 45 minutes of laying still and cuddling. And there is nothing wrong with that for so many personal reasons. Those reasons I’ll discuss in another entry.

While I laid there patiently waiting for her to settle down and fall asleep, I thought over the past two days. I am pushing for a 40-mile December. To some, that might not seem like much. Only running 40 miles in a month. Many in my online running group have big, amazing goals like 100+ miles or are headed for a 3000 mile year. To others like my non-running husband that seems like a ridiculously large amount.

To me: Attainable but it would require finding time whenever possible to squeeze in a few miles. Time would be a much bigger challenge than distance.

So I did. Sometimes in only 10-15 minute increments. Running into the Wellness Center or down the road for however long I could snip a quick moment out of the day (with childcare). Looking at the calendar, it’s easy to see when school was still in session: homework, carpool, work, meetings, appointments, feeding my crew… and not much running.

I’m sitting today at 37.2/40. I’m feeling confident I can get the last 2.8miles today.

dec30

However, it may be slower than the past few days. Just speculating, but I think I made my neck lesion mad.

Wednesday I knocked out a pace that I haven’t managed before. I ran my 5K in approximately 24 minutes. As I finished up mile 3, my legs started to get wonky and did not want to stride correctly. It was a strange phenomenon I’ve never experienced before.

Thursday, I ran intervals for mile 1. I warmed up from 6.0-6.5. I revved the treadmill up to 8.2. I needed a quick trip to the bathroom following mile 1 so I jogged to the locker room. 

I’ve had the “tingles” in my legs before when running, but never quite like this. It wasn’t painful, but tingles on the outside of my thighs, and on the inside and outside of my knees when I sat down. When I stood up they were gone.

My spine felt good – no L’hermitte’s. Hips good. No issues in my legs upon washing my hands and walking back to the treadmill. I ran another mile at 7.0 revving up to 9.2.

But in the quiet of my daughter’s bedtime, I have to ask myself – Did I push too hard? Is this normal for anyone else?

For years, I assumed that the strange things that my body did were just normal quirks. No pain, so not a big deal. Just an occasional muscle jerk here or a double clutch on my left foot when doing Zumba. It wasn’t until the numbness of my actual “event” (which I thought was exercise induced by bad form with a kettlebell) that my medical professional and I were led to say “what is going on in this otherwise healthy person?”

Pretty sure my neuro (who I’ll see in February for a 6m check) would say “Hmmm… Jen, use some common sense here.”

Common sense – Looking at, working out with, or having a conversation with me would lead a person with common sense to say ‘she’s perfectly healthy!’ But looks are deceiving, which I was reminded about by the presence of my tingles.

Looks like I’ll be finishing up my last 2.8 a little slower than I’d planned. I can’t express how thankful I am to be able to run or even hop or walk those last miles toward my goal. Those tingles gave me something to think deeply about and brought about a whole new depth of gratitude for simple mobility.

Don’t take anything in life for granted.


Much love to you as we close out 2016! — Jen