Health · Perspective

Invisible Symptoms

Today I’m filling a chair. That’s virtually it. At work, I’ve answered the phone (a lot), taken messages, updated the website and made a to-do list. But…. much of that to-do list will just have to wait for tomorrow. My brain is altogether exhausted.

When a brain is tired, one might think it’s from being a contestant on Jeopardy or perhaps sitting at an important round-table business meeting. Today, my brain is fatigued from a main platter of MS with a side of crazy female hormones. Friends, that’s a bad combination!

Last week, my husband and I trekked to Denver for my annual neurology appointment. Overall, I’m doing very well and MRI-land is completely stable. We both love being active and outdoors, so in addition to the yearly neuro appointment we spent the day in Rocky Mountain National Park.

I met with a new-to-me neurology NP for this appointment the day after our hike. This was the most informative appointment I’ve ever experienced. Perhaps this was because she had a medical student with her? The med student actually performed the physical exam (the works – walk on toes, follow finger, tell me when the vibration stops on your foot…). With each test, she explained whether my results were “normal” or “typical of MS patients.”

My three biggest concerns were addressed. Two of these, I’ll talk about here. Numero Uno is fatigue. I found myself needing 20-40 minute naps a few times a week this summer. If you read my previous post about our summer activities, you’ll see a constantly on the go schedule. Who had time for naps?!

Guess her prescription. Seriously, just guess…

It was to…. TAKE NAPS. Her exact words were “a nap can do more for you than any medication I could prescribe. You need to take the guilt out of getting rest.”

She explained that where the lesion is on my spine, I have a “loss system with invisible symptoms.” When my brain contacts my legs (and thankfully they still do), my legs hear the request as a whisper and they SCREAM back. It takes my body more energy to do things because the lesion slows down communication.

When my legs SCREAM back, it comes across to the onlooker as over-reactive reflexes. This was my second concern. My feet and legs have such a touchy reflex that spin class is difficult. As my body heats up from exercise, they become even MORE over-reactive!

Her response: “Get used to it and be happy about it.” Well…. alrighty then… She further explained that I should be ecstatic that my legs and brain are communicating. I guess that means that I’ll strap my feet into my spin bike and just roll with it (pun intended).

After my physical examination, she told me that I’m doing all the right things. I’m drinking a plethora of water daily and my nutrition is good. Continued exercise and guilt-free sleep are my  prescriptions in addition to the Tecfidera.

When I relayed this information to a nurse friend of mine, her response was that it was refreshing to have a medical professional NOT push medication. Instead, she recommended I go back to the basics of self-care: sleep, exercise, and water.

Thus, I have. I napped both Saturday and Sunday. I exercised in some form 6/7 days last week. Water? Always 90-110oz a day.

I can’t reverse the damage already done, but I can make sure I’m doing everything possible to prevent progression.

Much love — Jen

Family · Fitness · Health · Perspective

Tingles

Did I Push Too Hard?

That is the question I was asking myself as I laid with my 4yr old at bedtime last night. We finished prayers. She talked about Lola the dog and Aspen her daycare friend. She answered my daily request of “what was the best part of your day?” And then we laid there and held hands while her favorite lullabies played softly.

I cherish this time of night with my littles. My husband and I trade-off nights with each child. Sometimes it is a quick 5 minute tuck-in with prayers, but tonight was 45 minutes of laying still and cuddling. And there is nothing wrong with that for so many personal reasons. Those reasons I’ll discuss in another entry.

While I laid there patiently waiting for her to settle down and fall asleep, I thought over the past two days. I am pushing for a 40-mile December. To some, that might not seem like much. Only running 40 miles in a month. Many in my online running group have big, amazing goals like 100+ miles or are headed for a 3000 mile year. To others like my non-running husband that seems like a ridiculously large amount.

To me: Attainable but it would require finding time whenever possible to squeeze in a few miles. Time would be a much bigger challenge than distance.

So I did. Sometimes in only 10-15 minute increments. Running into the Wellness Center or down the road for however long I could snip a quick moment out of the day (with childcare). Looking at the calendar, it’s easy to see when school was still in session: homework, carpool, work, meetings, appointments, feeding my crew… and not much running.

I’m sitting today at 37.2/40. I’m feeling confident I can get the last 2.8miles today.

dec30

However, it may be slower than the past few days. Just speculating, but I think I made my neck lesion mad.

Wednesday I knocked out a pace that I haven’t managed before. I ran my 5K in approximately 24 minutes. As I finished up mile 3, my legs started to get wonky and did not want to stride correctly. It was a strange phenomenon I’ve never experienced before.

Thursday, I ran intervals for mile 1. I warmed up from 6.0-6.5. I revved the treadmill up to 8.2. I needed a quick trip to the bathroom following mile 1 so I jogged to the locker room. 

I’ve had the “tingles” in my legs before when running, but never quite like this. It wasn’t painful, but tingles on the outside of my thighs, and on the inside and outside of my knees when I sat down. When I stood up they were gone.

My spine felt good – no L’hermitte’s. Hips good. No issues in my legs upon washing my hands and walking back to the treadmill. I ran another mile at 7.0 revving up to 9.2.

But in the quiet of my daughter’s bedtime, I have to ask myself – Did I push too hard? Is this normal for anyone else?

For years, I assumed that the strange things that my body did were just normal quirks. No pain, so not a big deal. Just an occasional muscle jerk here or a double clutch on my left foot when doing Zumba. It wasn’t until the numbness of my actual “event” (which I thought was exercise induced by bad form with a kettlebell) that my medical professional and I were led to say “what is going on in this otherwise healthy person?”

Pretty sure my neuro (who I’ll see in February for a 6m check) would say “Hmmm… Jen, use some common sense here.”

Common sense – Looking at, working out with, or having a conversation with me would lead a person with common sense to say ‘she’s perfectly healthy!’ But looks are deceiving, which I was reminded about by the presence of my tingles.

Looks like I’ll be finishing up my last 2.8 a little slower than I’d planned. I can’t express how thankful I am to be able to run or even hop or walk those last miles toward my goal. Those tingles gave me something to think deeply about and brought about a whole new depth of gratitude for simple mobility.

Don’t take anything in life for granted.


Much love to you as we close out 2016! — Jen