Sunday- Monday was our biannual road trip to see my neurologist. We left after church on Sunday. Kissed the kids, installed the car seat in grandpa’s vehicle, threw the bags in the backseat of our truck and headed west.
I love getting to spend that time with my husband — and by time I mean about 7 hours one way and then about 7 hours back. We cover a lot of topics that we don’t normally get to talk about.
I sing in the car to pretty much anything that comes on. I tried to introduce him to a different genre of music, not so successfully. I listened to his talk radio shows for awhile. We tried to get excited about the Super Bowl, but meh. Not so entertaining on the radio.
We arrived at our friends’ apartment in time for the 2nd half of the Super Bowl and then continued to visit late into the night — 11pm is late for us. Don’t judge. We changed time zones and have two young kids. They were very gracious to put us up for the night. In the midst of our visit, they are closing on a new house and moving out of their apartment in 2 weeks!
Denver is a big city. We spent most of the morning in traffic trying to get somewhere to eat breakfast. We finally settled on a clean, suburban IHOP where 3 guys were sharing a joint outside. Oh Colorado… How different you are…
Of course, IHOP isn’t known for its dairy free options so it isn’t EVER my first choice. However, the map on my phone had taken us to two options that were not open, so I settled for a California scramble minus the cheese and butter and added some hot sauce.
After that we trekked back north towards a shopping center where I completely struck out on the two things I needed: jeans and a swimsuit. There are no swimsuits for sale in or around Denver in February. #Ihateshopping
Fortunately, there was a good coffee shop at this shopping center. I settled for a coffee and read my book while he continued to browse. (Present over Perfect – a gift from a friend for Christmas – check it out for a new read.)
As usual, my actual appointment and reason for the road trip was short and sweet. We reviewed my MRI – stable, did blood work – all in normal ranges, and ran thru my physical assessment – no loss of sensation this time! All good things.
She was very interested in my bout of GI virus about a month ago as it apparently caused a psuedo-relapse and threw my nervous systems for a loop before I even had the actual GI symptoms. The crazy pain it caused was likely a “MS Hug.” All things that are new to my experience with this disease. See my blog Tingles about this.
Two interesting developments:
1) We didn’t do contrast on my annual MRI. There is research that the gadolinium can eventually build up in the body and isn’t good for the kidneys, so the group of specialists where I doctor have decided not to order contrast unless they believe something is new or active. I have neither indicators, so no contrast.
2) There is a new treatment being approved by the FDA this spring. It is only twice a year infusions and thus far after 3 clinical trials, has no risk of PML. I’m doing well with almost non-existent side effects with the Tecfidera. I’m not looking to change right now, but this would be a good option in the future according to my neuro – pending getting it thru all the insurance hoops.
Home again home again…
We were happy to make it home late last night and the kids were excited to see us this morning. It’s a big sigh of relief when that trip is over and done.